Philadelphia, PA: Elsevier; chap Gorodkin R. Complex regional pain syndrome reflex sympathetic dystrophy. Chronic pain. In: Cifu DX, ed. Braddom's Physical Medicine and Rehabilitation. Reviewed by: Amit M. Review provided by VeriMed Healthcare Network. Editorial team. CRPS 2 is caused by an injury to a nerve. This condition is more common in people ages 40 to 60, but younger people can develop it, too. Symptoms The key symptom is pain that: Is intense and burning and is much stronger than would be expected for the type of injury that occurred.
Gets worse, rather than better over time. Begins at the point of injury, but may spread to the whole limb, or to the arm or leg on the opposite side of the body.
Stage 1 lasts 1 to 3 months : Changes in skin temperature, switching between warm or cold Faster growth of nails and hair Muscle spasms and joint pain Severe burning, aching pain that worsens with the slightest touch or breeze Skin that slowly becomes blotchy, purple, pale, or red; thin and shiny; swollen; more sweaty Stage 2 lasts 3 to 6 months : Continued changes in the skin Nails that are cracked and break more easily Pain that is becoming worse Slower hair growth Stiff joints and weak muscles Stage 3 irreversible changes can be seen Limited movement in limb because of tightened muscles and tendons contracture Muscle wasting Pain in the entire limb If pain and other symptoms are severe or long-lasting, many people may experience depression or anxiety.
Other tests may include: A test to show temperature changes and lack of blood supply in the affected limb thermography Bone scans Nerve conduction studies and electromyography usually done together X-rays Autonomic nerve testing measures sweating and blood pressure. Surgical or invasive techniques that may be tried: Injected medicine that numbs the affected nerves or pain fibers around the spinal column nerve block.
Internal pain pump that directly delivers medicines to the spinal cord intrathecal drug pump. Spinal cord stimulator, which involves placing electrodes electrical leads next to the spinal cord. A low-level electrical current is used to create a pleasant or tingling sensation in the painful area is the best way to reduce pain in some people. Surgery that cuts the nerves to destroy the pain surgical sympathectomy , although it is unclear how many people this helps.
Patient may need physical therapy. A muscle contracture is stiffness caused by prolonged position held by patient due to the pain caused by CRPS. We inject a combination of Lidocaine and corticosteroids to numb the affected nerves which relief the pain and sensitivity.
Electrical currents sent to the affected nerves by a stimulator that is implanted in the spinal cord may be a great long term option. Does anyone know someone my doctor is not super familiar with CRPS and its spreading so I need someone that understands.
My wife was recently diagnosed with CRPS. Thanks for what you do! I emailed you today. Pls provide a list of doctors for CRPS for my husband, 37 yrs old.
I have been in pain for three years. I have done everything. Nerve blocks, ketamine, gabapentin. One said definitely CRPS and one said nope. Have been to other doctors and they are on the fence. In the mean time the back of my foot is all red and burns. I am ready to leave and get neridronate treatments overseas.
One doctors said its a scar tissue pressing on the nerve and would do surgery Im petrified of this because this all occurred because of a surgery not needed and not explained gone horribly wrong. Do you have any top doctors in this field in NYC or anywhere I am willing to travel for a specialist who can help or give me the confidence of a diagnosis.
Per my own request I just started a program of PT and seeing a psychologist that work together. I already had a sympathetic nerve block that did not help at all. I am an active person and can no longer participate or engage my family in any active outdoors activities and barely even in our own home. I also can no longer work to help support the family as my job is very physical.
I am not convinced my new MD really knows what to do with me and has not referred me out except to have a 2nd ortho consult which honestly is pointless. I am going to be moving to arkansas and need to find a doctor. Could you please email me a list. We will be near Mountain View but am will to travel for the best care possible. I was injured in , had two surgeries to repair a distal biceps tendon, first surgery failed, nerves damaged with the second surgery. I have lost complete use of my arm and hand, it has spread to the foot on the same side.
We are in same situation where they treat pain but not disease and same area. My son was recently diagnosed with rsd. We have been searching for knowledgeable doctors in our area. If you could send me the list, I would greatly appreciate it.
I have no issue with driving a distance for the best care possible. I was just definitaly diagnosed with CRPS yesterday, after all other possibilities were ruled out. I appreciate any information and advice that anyone can give me as well.
Please send a list of specialist in the New Windsor NY area. Requesting someone who really specializes and not just someone who will give only medication for temporary relief. Hello everyone and welcome to Please be advised that we are responding to requests for physicians lists in this comment section, and others on the website, by emailing lists directly to those who comment. Please ensure your email address is spelled correctly and that you identify the state you live in when leaving your comment.
Or for IN and Michigan I live on the border. Just getting the diagnosis What treatment would be recommended or not recommended for a 15 yr old? They are suggesting a spinal block or Hypobaric treatments. IS it worth the money if not covered by insurance? Hello, my 12 year old sister was diagnosed with CRPS this Novemeber and we finally saw a neurologist today, who recommended we go to a speciality clinic. We live in Pensacola Florida. Would you please give us some recommendations?
Since I have experienced burning and neuropathic pain and numbness of my hand. I also have been diagnosed with Charcot Marie Tooth, type 2.
Any centers in or near SC that could evaluate and treat. Hi, we are in Pittsburgh and would greatly appreciate a list of either neurologists or physiatrists specializing in CRPS. They have to accept UPMC insurance. Thank you and God bless you. I am a 24 year old post-collegiate runner dealing with crps in my feet after multiple stress fractures. I live in Louisville, KY. I would love some advice! My daughter was just diagnosed with CPRS. Can you please send me a list of doctors who treat this in my area.
We live in West Palm Beach Florida. We are in irvine ca. My som is struggling with chronic pain.. I am currently in Ohio, but I am based in California and have more family in Virginia. I am willing to go anywhere to nip this in the bud. Any suggestions for doctors? Ohio is very, very not understanding about pain.
I tried to get into a pain doctor in May and he reported me as a drug seeker when I was calling about nerve blocks. He never even found out why I was calling. It is still early. Please help. My sister has suffered with CRPS for years and is desperate for relief. Can someone please, please, please offered a some suggestions and a list of doctors in NJ and the surrounding area. My sister has been dealing with CRPS for years and is desperate for some relief. Can you please, please, please send me a list of recommend doctors for New Jersey.
Please send me a list of doctors in my area that are knowledgeable. I have been dealing with this terrible disease for 2 years and pt twice a week psychotherapy once a week and doctors visits ER visits you name it katamine infusions. Can you send us a list of Doctors in central Mississippi and Louisiana? Hey thanks for posting this useful tip here how to obtain the best medical care for crps, I really hope it will be helpful to many. Appreciative content!! This is really Wonderful information, thanks a lot for sharing kind of content with us.
Seeking help for my daughter. CRPS symptoms since and it just got labeled this summer. She has had multiple Ketamine infusions with no relief. She is only 20 years old. Tried to set up an appointment at the Mayo Clinic in Jacksonville and was told they could not help her.
Can you recommend anyone in the Southeastern PA area that I can take her to? We are willing to travel so please send me info on the place that has the most successful treatment results. Hi there! Can you confirm your email address or email us at info rsds. The email address we have for you is not working. Can you please share a list of doctors who treat this condition in New York City?
If you have any leads please do let me know. Aldo Thanks so much! Please send me info about Doctors who specialize in CrPS of arm after wrist fracture. Rheumatologist gave differential diagnosis of CRPS and I have an appointment with a neuromuscular neurologist in January I also have several other pain conditions such as rheumatoid arthritis, poly arthritis, poly myalgias, peripheral and small fiber neuropathy, degenerative disc disease, and IBD.
I am a post liver transplant patient 7 months and I believe that the onset of CRPS is a direct result of a negligent nurse. My transplant went as perfect as anyone could have imagined. I got the perfect liver and I was the last transplant before my transplant center stopped further transplants due to COVID. My surgery took 3 hours and I was expected to be discharged on the fourth day.
As expected, on the morning of the fourth day, I was told to get ready to go home. I felt wonderful and better than I had ever felt in my life. The nurse came in at the end of her night shift to finally empty my drain bulbs from the fluid in my abdomen. I had been sitting in bodily fluid for over two hours and she realized my sheets needed to be changed.
As I was preparing to get out of the bed, I asked her to please check that my drain bulbs were attached to my gown. She was very snippy and annoyed and said that they were. She was angry now and yelled that they were that she could see that they were.
I believed she did but sure enough when I went to stand up, down went the drain bulbs causing me to rupture. The pain was excruciating and immediately, I knew something was wrong. I could literally feel something in my body change.
The trauma team along with my surgeon rushed me to the operating room just like you see on TV. I could see my vitals dropping fast and the surgeon and and anesthesiologist kept slapping my face and legs and kept yelling at me to stay awake until they put me to sleep.
Any help would be greatly appreciated. Greetings, We live near Cleveland Ohio. My wife has been suffering with this for years. Her quality of life is very low. Due to the opioid issues, the pain management doctors refuse to give her any more opioids and everything else they have tried does not seem to help. She already has a stimulator implanted in her back, but the CRPS has spread to half her body and the implant does not cover it all. She is losing hope of any relief and when she flares up, there is nothing that helps.
She just wants it to end. Hello, can you provide me with a list of providers for the Phoenix metro area in Arizona? I was diagnosed with RSD in My daughter has been diagnosed with CRPS. We have tried blocks, stimulator and ketamine infusions. Nothing is working. Can I get a list for Houston Texas. Now have all symptoms of CRPS. Had wrist surgery 8 weeks ago and now in early stage of CRPS. Would like someone who specializes around my home in Kennesaw Ga. Would love a listing of help around me Thank you.
Is it possible to send me a list of the best doctors in the St. Louis area. But honestly, I am willing to travel anywhere in the US for the best doctor. I have had CRPS in my foot for 4 years. I have been miscerable. I need help. I was wondering what doctors were the best in Michigan? In the US? I can travel easily to any of those states from where I live in Louisville, KY.
I live in a small town in nc I have been getting treated by my family physician up until this point but she has left the practice.
Can anyone recommend drs in the area? I have had CRPS for over a year. I have been treated by a pain management doctor and have a stimulator in. Any hope that someone can let me know if they know of anyone. I also need a doc who will prescribe Low Dose Naltrexone, if possible. Thank you for any help! Could you please share the name of your wonderful doctor in Colorado Springs? Can you please help me find a new doctor who treats CRPS. My Dr of 30 years died.
I feel very hopeless. Recently diagnosed with CRPS after an epidural bruised my spinal cord. Currently undergoing physical therapy, sympathetic nerve blocks 2 a week and a cocktail of narcotic and non narcotic pain meds. All combined, yea, a little relief, but not enough to get more than an hour sleep.
Can you send list of specialists around our area. I cannot imagine what you and your daughter are going through. We have traversed and treated throughout WI and continue to hit roadblocks.
Please shoot me the specialist list if you are provided one for WI. I have already sent a request to the contact email from this site. Also, we may be able provide you insight on our experiences thusfar in WI. I would really appreciate a list of recommended physicians in the Denver metro area. I am at a loss for who can help me get out of the vicious cycle of pain and who is responsive to basic communication. Can you please send me a list of physicians in Arizona or if not, in the southwest United States?
I have been dealing with CRPS since after a knee injury. Over the years it has spread almost everywhere. Only my arms, shoulders, neck and head have not been taken over. My pain has never been well controlled. I was wondering if you had anyone that you could recommend? Thank you for your time. Please send me information as well. It would be greatly appreciated. Thank you for everything you all do for us This website has been a lifesaver either way.
I live in southeast Indiana around fifty miles from Louisville, Kentucky. Can you send me a list of physicians who treat CRPS? Hello my mother had a knee injury and needs a knee replacement. In the process she has been diagnosed with CRPS. Her leg and foot is losing feeling and her toes are curling under.
If you have a recommendation for someone in the West Palm Beach Florida area the could help us figure out the best treatment that would be extremely helpful. Thank you in advance. My sister had knee surgery 6 months ago and ended up with crps. Do you know of anyone she can see. She is really desperate and we are disheartened. Thanks for any information you can give us.
My previous doctor was wonderful, but my new insurance no longer covers him. Thank you so much for your help! Looking for help. Rsd phase 2 bilaterally. Have had it for 16 yrs. Started in left calf and foot and has progressed to bellybutton to toes both side. Im desperate and would rather die than continue life as it is now. My 16 year old niece lives in Steamboat Springs, CO.
She was diagnosed with CRPS one a year ago and has had 2 ketamine infusions. The infusions helped a little but she is still in daily pain. Looking for doctors that understand and treat CRPS. My daughter 20 has suffered for nearly 10 years and it has been getting worst.
Been with Pain Mgmt doc but want someone who understands this best. Please send a list of doctors in a mile radius of central NJ Matawan. Could you send me a list of doctors in Utah? Ive been in the chronic stages of crps for the last 15 years.
Thanks for your time and everything you do. We live in North Louisiana but can travel. Your aid will be greatly appreciated. Then the pain began like groundhog day being diagnosed with CRSD. I live in West Coast of Florida, Clearwater area.
Thank you sooo much! I have been living with this since and it is getting harder and harder to make it through the days. I have my 4th spinal cord stimulator in and the pain center I had went to closed. Do you have a place I might get some help and can you tell me What I can do to get us all some help.
My son was diagnosed with CRPS 3 years ago. What treatment facility or doctors would you recommend? We live in Louisville, KY.
Would you recommend The Bridge Recovery Center? Hi there. I am on a desperate mission to help my dad who has recently been diagnosed with CRPS. Can you please send any information on practitioners in Florida? But honestly we would even love information on who the top rated doctors in the country are. Thank you for this article and all this guidance! She has referred me to a pain management physician but I want a second opinion before choosing any additional treatments. I can travel for the best interdisciplinary team if needed.
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